My Cancer Battle: Update thread (Title changed again)
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Dave Richards
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« Reply #255 on: May 19, 2008, 09:38:23 AM »

food processors are your friend. Plus... with them, you'll discover new and interesting flavors as you pick and mix your mush!
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« Reply #256 on: May 19, 2008, 10:08:41 AM »

My brother broke his jaw 2 years ago playing rugby. His mouth was wired shut for almost a month, and he could only eat like that. He refuses to eat mush ever again, especially apple sauce. He may be able to feel some of your pain, Chris.
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Christopher Carl
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« Reply #257 on: May 19, 2008, 06:38:24 PM »

food processors are your friend. Plus... with them, you'll discover new and interesting flavors as you pick and mix your mush!
No longer needed. I am getting back into solids again. I just take things step by step (ooh baby), day by day (by day by day). God is good, yo.
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« Reply #258 on: May 19, 2008, 06:51:53 PM »

word up homeslice, good to hear! God IS good
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« Reply #259 on: May 19, 2008, 07:47:07 PM »

Was that the NKOTB coming out from you?  Shocked

food processors are your friend. Plus... with them, you'll discover new and interesting flavors as you pick and mix your mush!
No longer needed. I am getting back into solids again. I just take things step by step (ooh baby), day by day (by day by day). God is good, yo.
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Christopher Carl
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« Reply #260 on: May 19, 2008, 08:18:43 PM »

yes. speaking of the kids, reunion looks good.
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« Reply #261 on: May 24, 2008, 04:19:47 PM »

OK I just made a two month overdue update to my cancer blog. I know some of you have emailed me asking me to do so. www.chrisandcrystal.com/cancer Thanks!
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« Reply #262 on: June 03, 2008, 11:23:50 PM »

OK, so yesterday, I had my feeding tube removed. My abdomen muscles feel like someone kicked me repeatedly like 100 times. Still, I am glad to have it gone. it's wierd. It looks like I have a 2nd belly button about 3 inches above my real belly button.
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« Reply #263 on: June 04, 2008, 12:01:53 AM »

Born again?
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« Reply #264 on: June 04, 2008, 01:20:38 AM »

lol
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« Reply #265 on: June 08, 2008, 04:38:33 PM »

OK, So how has eating changed since all this?

Someone asked me this question recently (not really, nobody asked me...I just figured for narrative sake it sounded nice. I am a total liar) and it got me thinking about what it was like to eat food a mere six months ago. Things are definitely different now.

Imagine having to consider when trying to decide what you want for lunch things like food moisture, level of spiciness, sweetness, sourness, portion size. Yeah, these seem almost like normal things to consider when you type them out. Even I am asking myself, so...what's the big deal?

OK let's start with moisture, or rather dryness. Since the radiation, my mouth has pretty much dried up. I don't produce normal levels of saliva, which we all know is the beginning stages of digestion. I crave hamburgers, hot dogs, and other foods wrapped in bread. So if I decide to have one, I also have to have a HUGE drink with me so I can keep my mouth just wet enough to assist my teeth in breaking the food up so I can swallow.

Also, a handy little treat I was given from the radiation is a VERY sensitive mouth to spice, sweet, sour, and carbonation. Even the slightest hint of heat in a taco will cause my entire mouth to freak out as if someone poured habanero sauce all over it. I can only snack on my deserts because my mouth gets a sweet overload on just a few bites. Carbonated drinks have to be fizzed out before I can consider drinking them. Toothpaste burns my mouth every time I brush.

Then there's the salivary gland damage that was done during my January surgery which causes a severe pain throughout the right side of my face when I eat. Above all else I listed here, I have to consider whether or not this meal/drink will cause my salivary gland to flare up and send me wincing in pain. I have discovered it's not everything I eat, but most things do. Typically, the wetter something is with as little flavor as possible does not cause any pain. So, water would be ideal, LOL

Portion size is not a major issue, but it is still something I have to look at. My stomach has "shrunk" as a result of only taking in liquids for so many months. I can't eat huge meals like I used to. I try, LOL. I look at it this way, if I order spaghetti and can only eat about 1/3 of it, I have two more meals for the price of this one. It's a money saver and I don't over eat like I used to. Example: yesterday Crystal bought me some Chinese noodles for lunch. I had it for lunch, dinner, and a late night snack while at work. 

Oh I forgot about the texture of the food. I can't eat candy right now because the texture of the candy irritates my tongue. As well as chicken nuggets, fries, tater tots, and most other sources of deliciousness.

I am told my eating ability could change again, either to something more like what it used to be or something slightly worse than what I deal with now. Either way, I just hope my mouth's sensitivity will go away. That is my major obstacle from REALLY being able enjoy some of my favorite foods such as Indian, Thai, Spanish, and other fine cuisines from around the globe. Until then, I fill most of my meals with mild pasta dishes and bite sized chicken.

 - Chris
« Last Edit: June 08, 2008, 04:43:56 PM by Christopher Carl » Logged

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« Reply #266 on: July 06, 2008, 08:02:31 PM »

I guess another update is needed.

My PT scan results were good. Not awesome, but good. Apparently I still have cancer. a small 1 centimeter mass is in the right side of my neck. It has shrunk from 3 cm (before treatments). Also it's not very active anymore either.

We scheduled another PT scan in 3 months.

On a level of how this is affecting me physically, I wake up daily in pain on the right side of my upper body, from my jaw muscle/ear area down to my shoulder area (front and back, upper ribs region). My neck especially aches. My body is having a rough time adjusting still to the missing tissue and nerve endings on that side from the surgery.

To give you an idea of how it feels, imagine what your shoulder feels like the day after a rough workout where you were lifting a lot of heavy free weights...then pack on the feeling of something pushing down and squeezing your shoulder...then occasionally have someone poke you with a needle or two in random places in your shoulder. That's me on a daily basis.

It's partly my fault because I am supposed to do these exercises for my physical therapy, but these exercises hurt like nothing I have ever felt. I need to just start doing them again and push myself through the pain. I would not wish this on anybody.

Don't get me wrong, I am not complaining. I am thankful to be alive. I know God will give me an amazing testimony when all this is said and done. If all I gotta deal with is a sore shoulder, then I am OK with that.
« Last Edit: July 06, 2008, 08:04:12 PM by Christopher Carl » Logged

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« Reply #267 on: July 07, 2008, 01:48:39 PM »

Prayed for you man and I really mean that its been a while since I can proudly say I did. You will be a massive testomony.
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« Reply #268 on: July 13, 2008, 01:39:51 PM »

New update from my cancer blog @ www.chrisandcrystal.com/cancer
Quote
"The Possibility"

From the title it may sound like good news, however if you were my wife you would strongly disagree.

About two weeks ago, I had a follow-up PT Scan that was pretty much a full body scan. The results were given to me from my radiation doctor. His prognosis seemed optimistic to me. Apparently, I still have a cancerous tumor in the right side of my neck even after surgery, radiation, and chemotherapy. The tumor, however, has shrunk from what it was before radiation (3cm down to 1cm). Also the tumor's activity level (called SUV) has dropped from 26 to 12. The idea from my radiation doctor is that we will get another scan in 3 months and by then, hopefully the tumor will be gone or extremely small and it's activity level will be next to none.

Sounds good, right?

This past Tuesday, I saw the doctor who did my neck surgery before the radiation treatment. It was a simple routine follow-up and he was looking at the PT Scan results (he didn't have the actual scan to review, just a report of the results). To him, it seemed that the results were actually negative. The fact that the activity level is 12 is potentially dangerous in his opinion. He said there is the possibility that this could come back based on the fact that even after all the treatments, it is still there and active. Apparently, a 12 is kinda high for this. He also stated that radiation would no longer be an option since I have already had it, and the human body can only take so much radiation before it starts to affect it negatively. Chemo would pretty much do nothing at this point. Surgery is kinda an option, but even that is not guaranteed because the tumor is so small at this point and my muscle tissue is so tight and stiff from the radiation that it would make it very hard to find and extract what is left. At this point, it is a wait and see situation. If things get worse, there is pretty much no chance for me to be cured.

So there we have it. Two different prognoses from two different doctors. Neither have affected me. I just laid this information in the Hands of Jesus and given it to Him to deal with. All I know is there is the possibility that I won't be here in a few years. I have my life to live and I can't be burdened with stupid stuff like this. If I survive, Praise God, He gets the glory. If I don't survive, Praise God, my eternal future is secure. If my time is short, I need to make the most of it. But these are mere "ifs". Only God knows the future. I will live my life.
« Last Edit: July 13, 2008, 01:43:17 PM by Christopher Carl » Logged

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Dave Richards
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« Reply #269 on: July 13, 2008, 02:47:11 PM »

Praying for you... still... always. Smiley

You are right. Live your life. Let God worry about the details such as time. If you go, you will be missed and in a much better place. If you stay, you'll have a hell of a testimony. Heck, even if you go... you're impact here has been tremendous in facing this. It's a win win situation for you. Just not us. Smiley

In either case, I'm proud to have known and to still know you.
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